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http://aidsunited.org
 
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Our Mission:
The SC HIV Task Force is a non-partisan advocacy coalition of individuals, non-profit organizations and allies committed to ensuring access to quality HIV prevention, treatment, care and linkage to services.
 
Our Sponsor: AIDS United
The SC HIV/AIDS Care Crisis Task Force is funded by AIDS United.
 
AIDS United supports more than 400 grassroots organizations annually that advocate for people living with or affected by HIV/AIDS and the organizations that serve them with special emphasize on communities of color, women and people living with HIV/AIDS in the U.S. South.
 

aidsunited.org
 
AIDS United’s policy staff has been instrumental in the development and implementation of major public health policies that improve the quality of life for those living with HIV/AIDS and ensure evidence based prevention programs to stop the spread of new infections.
Action Calendar

Visit the Events page to review complete information about all current and upcoming events.
Up-to-Date Documents
Right click any of these links and "Save As" to download these documents
 
Town Hall Flyers
Charleston Columbia
 
Expanding Medicaid in SC
(Task Force Talking Points)
SC ADAP Fact Sheet
(Feb 2013)
Task Force Pamphlet
DOC  or  PDF
 
SC ADAP Fact Sheets
Region 1 Region 2
Region 3 Region 4
Region 5 Region 6
Region 7 Region 8
 
Medicaid Expansion Preview
Special Fact Sheet Preview

Task Force Membership Application
Task Force Information Sheet
Fact Sheet 4/2012

 
Recent Advocacy Events:
Last April (2013), the Task Force held an Advocacy Day, joining with our  Medicaid Expansion partners from the SC Hospital Assoc.

In Jan (2014), once again we went to the State House to talk one-on-one with our Legislators. We thanked them again for the recurring ADAP funding put into the budget, and spoke to them about the necessity of Medicaid Expansion for SC.

In March (2014), we held free, open to the public Town Hall Forums discussing Medicaid Expansion and the ACA. These forums were held in Charleston (3/19) and Columbia (3/20).
 
Rally at the State House
Our previous Community Forums in March 2013 were in Columbia, Spartanburg, Rock Hill, Greenville and Charleston.

Visit http://schtf.com/me4sc for pictures and stories of all these events.
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Changing the Guard and Saving the Dates 4/23
Now that our Medcaid Expansion Forums were completed in March, we want to extend a hearty "Thank You" to our outgoing Chair Johanna Haynes. From 2012 to 2014, Johanna led us through seven forums, five advocacy events, and a Strategic Planning Retreat that determined the Task Force should continue to grow and become it's own non-profit organization. Following in the footsteps of Bambi Gaddist's leadership of the Task Force, Johanna guided the Task Force forward very well.
Welcome Incoming Chair
Gwen Bampfield
Access Network
Thank you Outgoing Chair
Johanna Haynes
Careteam
We welcome our new Incoming Chair, Gwen Bampfield, who is already showing great leadership beginning the work of moving the Task Force forward into non-profit status. However, don't think that will be the only job our new leader is doing. Gwen has already led the Executive Committee in determining upcoming meeting dates, planning for our first meeting under her leadership and recruiting guest speakers while starting the tasks of our deliverables for our 2014 grant from AIDS United.
 
Please save the date (and invite a guest!) to our next meeting on APRIL 23, 2014. Also make a note that we will be in a NEW location over at Brookland Baptist Church (Administration Building) (1066 Sunset Blvd, West Columbia, SC 29169 http://goo.gl/maps/uDo8f).
 
Because we will have a guest speaker for this meeting, please schedule this event from 10am - 1pm. We will be serving lunch, so please RSVP to let us know that you will be attending. You can RSVP by sending an email to communications@schtf.com or by using our response form.
 
The Task Force has normally met on Tuesdays, so you might be concerned that this April 23rd meeting will be on a Wednesday; but don't despair. The rest of our meetings through this fiscal year ( 4/14 - 2/15) will go back to Tuesdays. These upcoming meetings will be on: July 22, September 9, December 9, and January 20, 2015. (All Tuesdays) Please mark your calendar with these dates so that you don't miss out on any of our advocacy work this year.
 
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Town Hall Forums - Charleston and Columbia 3/19 & 3/20
As we did a year ago around the state, the Task Force once again hosted several Medicaid Expansion Town Hall Forums. This year we selected Columbia and Charleston because of the influential people, Legislators, and need for public education in both these cities. We originally scheduled these two events in February; but we had to reschedule due to the snow and ice storms that caused so much trouble across the state.
 
CHARLESTON
On March 19 in the Irene Dixon auditorium at Roper St. Francis Hospital,
the Task Force hosted it's Charleston forum.
 
Johanna Haynes (left), the outgoing Chair of the Task Force,
did an excellent job coordinating our efforts to produce these two events.
 
Ashley Redmon, incoming Chair for one of our new Access to Care subcommittee.

We would like to thank Ashley for making the arrangements with Roper St. Francis for the great event in Charleston.
 
Michael Luciano
winner of the 2013 SC STD/HIV Conference "Unsung Hero Award"
with our information table
 
 
Our panelists speaking to the audience about the
importance and impact of Medicaid Expansion in SC.
Representative for Community Engagement, SC Hospital Association
Robert Greenwald, Professor, Harvard Law School
Bill Settlemyer, founder Charleston Regional Business Journal

COLUMBIA
On March 20th in the Eau Claire Print Building,
the Task Force hosted it's Columbia Medicaid Expansion Town Hall forum.
 
Our Distinguished Panelists and Moderator
 
Frank Knapp
Co-Founder SC Small Business
Chamber of Commerce

Teresa Arnold
AARP South Carolina State Director
Monique William
ABC Reporter from WOLO-TV
Panel Moderator
Robert Greenwald
Professor, Harvard Law School

 Vince Ford
Palmetto Health Chief
Community Health Services Office
 
 
 
 
 
  Robert Greenwald in action!  
We can't thank the Harvard Law School and Robert Greenwald enough for their assistance. In the past Harvard has been together reports and fact sheets dealing with ADAP and Robert has now been an integral panelist/speaker at 7 forums and 5 training sessions in SC over the last 14 months.
 
Several members of the SCHTF Executive Committee
 
Jim Manning
incoming Chair for our new
Access to Prevention subcommittee

Johanna Haynes, Secretary
Anita Case, returning Treasurer

David Pable, Consumer Empowerment
 
Bambi Gaddist, Chair of the Research and Legislative Strategy subcommittee,
engages the panel and audience in the discussion about Medicaid Expansion
 
Gwen Bampfield (left), the incoming Chair of the Task Force
 
Kevin Johnson, Stakeholder Chair and Vivian Armstrong-Clark, prior Vice Chair
 
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Starting 2014 off with an Advocacy Day 1/14/14
Jan 14th Meeting Minutes
Consumer Empowerment Call Minutes
2013 Legislative Guide
(right click to save these Word Documents, click to view)

It was a great day in SC for the SC HIV Task Force! We started off the new year with a fully-loaded first meeting. We heard from all of our current Sub-Committee Chairs and some of the incoming Chairs (the new 2-yr term for the Executive Committee will begin in Feb. when our AIDS United grant renews); Guest Speakers presented material on ADAP and the ACA MarketPlace; and after lunch, a contingency of our members went to the Statehouse as part of an Advocacy Activity.
 
Our first meeting of the year (but the last meeting in our AU grant year)
was headed up by our Vice Chair, Vivian Armstrong.
MEETING
 
As you can see, we had a good sized crowd for today's meeting.
   
First up on the schedule was Treasurer Anita Case, who let us know there is still about $5k left in our budget for this grant year. We're right on track with our spending as we still have two forums (Charleston and Columbia) left in our deliverables.
 
You might not know this guy; but you do get emails from him!
 
Communications Chair Michael Bivens went through the documents we were going to be using for our Advocacy Activity.

Task Force Pamphlet
Medicaid Expansion Talking Points
ADAP Funding Thank You cards
Legislators Visit Log
 

 
Since we are in the process of combining our Legislative Strategy and Policy Research subcommittee, Bambi Gaddist and Gwen Bampfield (our new incoming Chair) spoke together about our advocacy efforts for the day and about our on-going project of becoming a stand-alone non-profit.
Sadly, we said goodbye to out-going Consumer Action Chair Zebedee Feaster. Zeb was unable to continue in that position and resigned.
As the Task Force finishes up one grant (with deliverables of two more Medicaid Expansion Forums) and moves into another grant (with the deliverable of regional consumer advocacy training), there is a lot of work the Consumer Subcommittee to do. The members of the subcommittee had met in the days before the meeting, voting to allow our consumer chair-elect to step up and take this chair position early so they can quickly move forward doing the important work of helping advertise for our upcoming forums.
   
Gladly then, we said hello to our new Consumer Empowerment Chair David Pable. David has already held one subcommittee meeting based on the sign-up sheet from out Sept. 2013 meeting. Already working hard, David will be getting more consumers involved with advertising about our upcoming Forums in Charleston and Columbia.
Any and all HIV positive Task Force members are encouraged to join the important Consumer Empowerment subcommittee. There is plenty to do before the forums and a lot to do in the next grant period as we reach out to train consumers on how to advocate with us - and for themselves.
   
Stakeholder Chair Kevin Johnson updated us on the work of his subcommittee. He presented a document from the subcommittee with a plan on approaching stakeholders to ask for a certain level of commitment in exchange for a certain amount of advocacy work we can do. Going forward as a non-profit, this plan is a good step towards the Task Force forging alliances using Memorandum of Agreement.
   
   
GUEST SPEAKERS
In our strategic planning sessions this summer, not only did we vote for quarterly meetings going forward; but we agreed to include Guest Speakers at each meeting. We were treated this meeting with not one but two Speakers. Roshan McDaniel (ADAP Director from DHEC) spoke to us about the state of the ADAP program.
   
Mary Jane Hardman (TA provider for DHEC) has been working with the Task Force for some time studying the various insurance plans available in SC within the Marketplace under the Affordable Care Act. She spent some time, after her presentation, answering a wide range of questions from the audience.
 
We closed our meeting out with lunch and preparations to head to the State House for our Advocacy Activity.
   
The gang from Catawba Care
(York, Chester, Lancaster counties)
is busy signing Thank You cards
and putting together a list of
14 Legislators they can visit.
Dr. Gaddist getting materials ready
to thank her Legislators
and advocate for
ADAP and Medicaid Expansion.
Outgoing Consumer Chair
and Incoming Consumer Chair
coordinating on how best to get more
Consumer involvement.
Task Force members gather
Thank You cards, Medicaid Expansion Talking Point Sheets, announcement flyers for our upcoming Forums, Task Force Pamphlets,
and a list of their Legislators.
   
Incoming Chair, Gwen Bampfield, making a list and checking it twice to make sure she stops by the office of every Senator and Representative representing the area of SC where her Access Network consumers live.
   
ADVOCACY ACTIVITY
"Thanking Legislator for ADAP Funding"
 
After lunch, Task Force members went over to the State House where the "Enough is Enough" Medicaid Expansion Rally was beginning. Although the morning had been very cloudy, windy and rainy, the skies cleared up just it time for many of our friends and neighbors to join together advocating for the full acceptance of the ACA.
   
Looking from the back of the State House, over the crowd, with Representative office building on the left while Senate offices are in the building to the right.
Maiava Blackwell, the talented Administrative Assistant for the Task Force, working the crowd distributing flyers about the upcoming forums.
We asked Maiava to tell us her thoughts about the rally and our advocacy event.
"ENOUGH IS ENOUGH" was the rallying cry as the "Truthful Tuesday Coalition" descended upon the South Carolina Statehouse to demand full implementation of the Affordable Care Act to include Medicaid Expansion. Members of the faith community, advocacy organizations, teachers, healthcare providers and concerned citizens called for accountability from our South Carolina legislators regarding healthcare, education and voting rights. Outside, despite the rain falling that morning; advocates for equality fulfilled their duty by coming together as a diverse body to celebrate their commonalities by sharing information and getting to know each other. Inside the Statehouse, SCHTF members thanked legislators for their support and expressed the ongoing needs of PLWH. SCHTF members and all organizations that are concerned about the plight of South Carolina’s neediest citizens are invited to be participants in upcoming events to continue the rallying cry of "ENOUGH IS ENOUGH"!
- contributed by Maiava Blackwell
 
Once again, we want to thank David Alexander (lft) for the great pictures posted here.
 
SCHTF members representing the state from the top (Rock Hill/Fort Mill) to the bottom (Charleston/Moncks Corner) The gang from Charleston ready to speak with their Legislators and to represent the needs of HIV positive people throughout SC.
 
While some members remained at the rally, passing out flyers about the Forums,
other groups went inside to speak with Legislators and visit their offices.
 
Longtime Advocates and Task Force Members
(Elizabeth McClendon (AHF rep), Kevin Johnson (Stakeholder Chair)
Bambi Gaddist (Policy & Research Chair), Vivian Clark-Armstrong (outgoing Vice Chair) )

made sure our voice was heard today!
 
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2014-2016 Strategic Planning Retreat 7/25/13
Minutes
Survey Questionnaire Survey Summary
Prevention Agenda Process/Operations Agenda
 All these files in a ZIP (RetreatDocuments.zip) folder
  
Beginning the first day of our Strategic Planning Retreat, we started with a full house. Nearly everyone who was a paid member and had attended over half of our meetings over the last year was able to attend this important strategy session. There was a great selection of people representing agencies and consumers from across the state.
   
   
Chairperson Johanna Haynes opened up the session by thanking everyone for attending and introducing our Facilitator Ben Ellington.
Ben Ellington, who had facilitated for the Task Force in the past, spoke about where the Task Force had been at the last Planning session in 2011, what goals the Task Force had set, and how the Task Force was accomplishing those goals.
Ben took a portion of the morning session to review the data and comments gleaned from the completed surveys that had been received. (You can view the survey here, though we are no longer accepting submissions from this survey.
You can read the summary of answers and comments that Ben received and collated from the surveys our members completed and sent in to Ben.
 
After discussions on the survey were completed, a conclusion was reached that there were two important issues we needed to tackle. Clearly one issue was that members wanted to push forward with more Prevention Efforts. The other issue consisted of  process and operations - specially the operations of the Task Force itself and a process for gaining a larger membership base.
 
Our attendees split into two ad hoc groups to discuss the issues and develop some ideas on how to tackle these issues. Each team took time to discuss their issue and brainstorm ideas. After a break, the groups can back together and created a list of actions/projects the Task Force should do to fulfill the tasks derived from their discussion session.
 
So let's take a look at what the Prevention Team and Process/Operations team put together
as actions and projects for the Task Force to handle as we move forward.

Prevention Committee Discussion Summary
Click here to download the complete Prevention Agenda
(including the Discussion and Conclusions) in a Word document

"An ounce of prevention is worth a pound of cure."
 
   
a) WHAT - The goals of our prevention projects should be:
  1) Primary Prevention - prevent initial infections
  2) Secondary Prevention - help PLWH use risk reduction for safer sex

b) HOW - To accomplish our goals, we need, local level involvement, to address cost effectiveness of prevention, to align with national strategy

c) WHO - The people we need to involve to accomplish our prevention goals: citizens from neighborhood festivals and health fairs, domestic violence groups, insurance companies, faith based organizations, school health advisory committees, and elected officials
 
Prevention Agenda Conclusions
1) The Task Force needs to create flyers about voter registration opportunities, determining who your officials are and a Cost effectiveness talking point sheet to help with local level involvement.

2) Members should consider joining Health Advisory Councils to influence positive sexual health care which should include HIV and STD prevention education.

3) The Task Force should hold Prevention Presentations to groups within our networks.
 
Click here to download the complete Prevention Agenda,
including the full Discussion and Conclusions, in a Word document

Process/Operations Discussion
Click here to download the complete Process/Operations Agenda
(including the Discussion and Conclusions) in a Word document
 
   
1) The Task Force should video record of events and meetings, and use youtube, live streaming or podcast to post these videos. We should also create webinars to further advocacy education.

2) Conduct a Survey of Executive Directors to learn about their limitations and strengths for bringing consumers to the table, providing transportation, hosting events, and connections with legislators.

3) Conduct a Consumer Survey to identify advocacy abilities and needs, and the level of participation by consumers.
 
4) Quarterly rather than Monthly meetings
The group discussed how the problem of too many meetings that weren't determined productive. The option was put forth to only have quarterly meetings, comprising of a meeting with a special speaker, some advocacy training, followed by an actual advocacy event. While this would make the timeframe of our meetings/activities longer, it would maximize the time our members were outside Columbia were in town. This plan would give us the same amount of advocacy events as we have been having, and allow for several opportunities throughout the year for extra advocacy events - with fewer time away from our jobs and less travel expense and time. To not lose momentum with members between meetings we will have updates and advocacy training or Prevention presentations.

5) Regional Consumer Advocacy Training - develop a plan and a program to take our mission and message "on the road" to PLWH/consumers throughout the state. If we can't get people to come to us to learn about advocacy and to join us, then we should go to them with a program to teach advocacy to create an empowered group of PLWHs who want to join with the Task Force.

6) Our information board needs to be at more events promoting the Task Force

7) More training on advocacy versus training would help us all in our advocacy work. There will be more information available in a session at the upcoming AU convening in early September. Several members of the Executive Committee will be attending and returning to share this information with the membership.

8) Medicaid Expansion/ACA/Exchanges Forums
we discussed holding another round of forums across the state

9) Since our most vocal champions in the Legislature, Joe Neal, won't always be a representative for us (everyone retires at some point), we must begin to cultivate a relationship with other Legislators. We need to keep the silent support we have, while making new vocal champions in the legislature.
   
Process/Operations Conclusions:
1) Create an ED survey
2) Create a Consumer Survey
3) Set up for Quarterly meetings
4) Sponsor and hold Regional consumer advocacy training sessions and Prevention Presentations
 
Extra Notes from Both Groups on Day One:
1) Share voter registration. Voting now requires a Photo ID. A person can vote as long as they are not on parole or incarcerated. It only costs $10 for a state ID. Voter information is available at scvoters.org.
 
2) Target emails to Executive Directors (ED) vs consumers; perhaps send informational emails to EDs and create a newsletter geared to consumers
 
3) Perhaps set up memberships for 2 yr period with a set renewal date. If all memberships were due at same time, memberships could be prorated for later application times, allowing for an annual membership drive. (could this drive coincide with voter registration drive ?)
 
Process/Operations Discussion
Click here to download the complete Process/Operations Agenda
(including the Discussion and Conclusions) in a Word document

This update has been brought to you by Michael Bivens, our Communications Chair, who was assisting in compiling all this information by our Liaison/Administrative Assistant Maiava Blackwell (to Michael's left in this picture), with pictures provided by David Alexander (to the left of Maiava, way back there in the back of the room)
   
Several of our out-of-town members had an interesting night at the Clarion. The force of the Full Moon must have been at work, when around midnight a cabbie began firing shots at a Clarion guest he thought was leaving the cab without paying the fee. Of course, this guest was NOT one of our members, and thankfully no one, especially our members, were hurt that night.
 
Day Two:
Our second day of planning started by looking at our "Terms of Reference". This document was created several years ago and has been edited with each planning session to reflect our goals and objectives. We began by simply considering our name and mission statement.
   
Within moments, the group had unanimously decided that our current name, the "South Carolina HIV/AIDS Care Crisis Task Force", was simply too bulky, too difficult to say, and too hard to remember. Noting that many groups and agencies were no longer using the words "AIDS" (as the meds have so dramatically helped to reduce that situation) but were using just the all-encompassing "HIV", we too dropped "AIDS" from out name. Next came a discussion about the words "Care Crisis". Although there seems to always be a crisis of care in South Carolina, without having an ADAP waiting list currently, we decided we didn't need those words right now. In the end we were left with the words "South Carolina HIV Task Force" (or SCHTF instead of SCHTF)
   
Next we tackled the mission statement. It was pointed out that our current statement was too long; and rather than pro-active, it was reactive.
Little by little we worked on
re-wording the mission statement.
   
   
You can see that everyone has on their "thinking caps" for today's session
 
 
After much thought and discussion, the group reached finally had a statement that was a simple dynamic, positively-worded single sentence explaining our mission and our goals:
 
The SC HIV Task Force is a non-partisan advocacy coalition of individuals, non-profit organizations and allies committed to ensuring access to quality HIV prevention, treatment,  care and linkage to services.
 
   
Notes on our work from Day Two:
1) Looking forward as ACA is implemented and more PLWH have insurance, the Task Force will needto change our advocacy concern. We will have to monitor that every one has access to insurance coverage; that PLWHs aren't adversely affected by discrimination ; and that coverage for care covers the needs of people living with HIV
 
2) The Task Force will need to engage those agencies, like community health centers, that willing be getting the resources.
 
3) Our members should look towards becoming part of school health advisory committees. This will allow our members to advocate for prevention and proper sexual health care education.
 
4) When the "Terms of Reference" is updated, there needs to be a better definition of the roles and responsibilities of the Executive Committee and General Members; along with time lines for the work of the sub-committees.
 
5) Re-organize as a 501(3)c to sustain funding and viability
One other topic took up quite a bit of our time; but the discussion was needed as it went to the heart of our operations. Quite simply, we talked about the future. The discussion began with questioning one of the goals in our "Terms of Reference" dealing with influencing policy.
 
As you know advocacy is promoting a cause in an attempt to shape public opinion, support or recommendation for a cause or policy; while lobbying is directly supporting specific decisions and bills made by officials in the government. So while the Task Force supporting, promoting and educating about ADAP and Medicaid Expansion is advocacy; promoting a specific bill or party would be lobbying. It was put forth then that for the Task Force to actually influence policy (craft a bill/legislation, request support of Legislator to promote this bill, and to advocate for the passage of this specific bill), we should consider the possibility of hiring our own lobbyist
 
As the discussion proceeded, various members talked about their experiences with non-profits and lobbying organizations. If we move forward in that direction, it's nearly guaranteed that we will have a lot of issues trying to raise funds - especially here in South Carolina for issues regarding  prevention of HIV and care for those infected with HIV. However, we might find that it's easier for the Task Force to sustain it's viability and status by simply becoming our own non-profit, without relying on any ASO to be our fiduciary agent.
 
Regardless of what we decide - continuing as an all volunteer organization with a fiduciary agent, or as our own non-profit agency, or as non-profit with lobbying abilities - it's obvious we need to study the options and give them all consideration. It goes without saying that we'll be discussing this issue in the days and months to come. In all likelihood, the Executive Committee will put together an ad hoc committee to study the options, interview other agencies like us (perhaps agencies like NCAN (NC Advocacy Network), and develop a plan on the steps of how we would change.
 
Of course, the Task Force is YOU, so we want your thoughts and feedback about this issue, and all the issues put onto the agenda at this Strategic Planning Retreat. Please make sure you attend our next general meeting on September 24th. Be ready to volunteer to support our Prevention Presentation agenda, and our Regional Consumer Advocacy Training programs
   
   
   
   
The members at the Strategic Planning Retreat put forth a great amount of work designed to improve the Task Force and strengthen our mission to improve the health care for People living with HIV in SC. As we heard before (from AIDS United and others), no other Southern state has an organization like our trying to coordinate and advocate for health care. The Chair and the entire Executive Committee would like to thank everyone who attended and for all your contributions to the goals of the Task Force.
 
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Special Community Events 3/25/13
Under the Affordable Care Act, states have been given the option to expand their Medicaid programs. Not only will this expansion bring more jobs to our state; but thousands of fellow citizens earning under 138% of the Federal Poverty Level will have access to health care.
 
Assisted by AIDS United, and supported by our partners in "Accept ME SC", the Task Force sponsored Press Conferences, Capacity Building Training classes, and Community Forums/Discussion Panel around the state to educate the people in SC about how expanding the Medicaid program will help our state and our neighbors. The Task Force held these events in Spartanburg, Rock Hill, Greenville and Charleston.
 
To learn more about each of these events, to see pictures,
or to download the information that was distributed, please visit
http://schtf.com/me4sc
(YouTube Videos coming soon from these events!)
 
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